Sometimes it is difficult to decide on the type of treatment to have. You may feel that everything is happening too fast, or you might be anxious to get started.
Check with your specialist how soon treatment should begin, as it may not affect the success of the treatment to wait a while. Ask them to explain the options, and take as much time as you can before making a decision.
Learn more about:
- Knowing your options
- Recording the details
- Asking questions
- Considering a second opinion
- Deciding on treatment
- Joining a clinical trial
Know your options
Understanding the disease, the available treatments, possible side effects and any extra costs can help you weigh up the options and make a well-informed decision. Check if the specialist is part of a multidisciplinary team and if the treatment centre is the most appropriate one for you – you may be able to have treatment closer to home, or it might be worth travelling to a centre that specialises in a particular treatment.
Record the details
When your doctor first says you have cancer, you may not remember everything you are told. Taking notes can help. If you would like to record the discussion, ask your doctor first. It is a good idea to have a family member or friend go with you to appointments to join in the discussion, write notes or simply listen.
Ask questions
If you are confused or want to check anything, it is important to ask your specialist questions. Try to prepare a list before appointments. If you have a lot of questions, you could talk to a cancer care coordinator or nurse.
Consider a second opinion
You may want to get a second opinion from another specialist to confirm or clarify your specialist’s recommendations or reassure you that you have explored all of your options. Specialists are used to people doing this. Your GP or specialist can refer you to another specialist and send your initial results to that person. You can get a second opinion even if you have started treatment or still want to be treated by your first doctor. You might decide you would prefer to be treated by the second specialist.
It’s your decision
Adults have the right to accept or refuse any treatment that they are offered. For example, some people with advanced cancer choose treatment that has significant side effects even if it gives only a small benefit for a short period of time. Others decide to focus their treatment on quality of life. You may want to discuss your decision with the treatment team, GP, family and friends.
For more on this see Cancer care and your rights.
Should I join a clinical trial?
Your doctor or nurse may suggest you take part in a clinical trial. Doctors run clinical trials to test new or modified treatments and ways of diagnosing disease to see if they are better than current methods. For example, if you join a randomised trial for a new treatment, you will be chosen at random to receive either the best existing treatment or the modified new treatment. Over the years, trials have improved treatments and led to better outcomes for people diagnosed with cancer.
You may find it helpful to talk to your specialist, clinical trials nurse or GP, or to get a second opinion. If you decide to take part in a clinical trial, you can withdraw at any time.
For more information, visit Cancer Institute NSW, Australian Cancer Trials or see Clinical trials and research.
Podcast: Making Treatment Decisions
Listen to more episodes from our podcast for people affected by cancer
More resources
Prof Elisabeth Elder, Specialist Breast Surgeon, Westmead Breast Cancer Institute and University of Sydney, NSW; Chanelle Curnuck, Dietitian – Dietetics and Nutrition, Sir Charles Gairdner Osborne Park Health Care Group, WA; Department of Anaesthetics, Perioperative Medicine and Pain Medicine, Peter MacCallum Cancer Centre, VIC; Jessica Feeney, Nurse Unit Manager, Breast, Endocrine and Gynaecology, Royal Adelaide Hospital, SA; A/Prof Richard Gallagher, Head and Neck Surgeon, Director of Cancer Services and Head and Neck Cancer Services, St Vincent’s Health Network, NSW; John Leung, Consumer; Rohan Miegel, Senior Physiotherapist – Cancer Care, Flinders Medical Centre, SA; A/Prof Nicholas O’Rourke, University of Queensland and Head of Hepatobiliary Surgery, Royal Brisbane Hospital, QLD; Lucy Pollerd, Social Worker, Peter MacCallum Cancer Centre, VIC; Suzanne Ryan, Clinical Nurse Consultant, Department of General Surgery, Sunshine Coast University Hospital, QLD; Rebecca Yeoh, 13 11 20 Consultant, Cancer Council Queensland.
View the Cancer Council NSW editorial policy.
Need to talk?
Support services
Coping with cancer?
Ask a health professional or someone who’s been there, or find a support group or forum
Work and cancer
Information for employees, employers and workplaces dealing with cancer
Cancer information
Making cancer treatment decisions
Decision-making steps, consent and second opinions
Deciding on specialist care
How to find and choose a surgeon, oncologist or other specialist