You may be reading this because you are caring for someone with cancer-related pain. Caring for someone who is in pain can be challenging and stressful. It’s natural to feel upset and helpless at times – it can be distressing to see someone close to you suffer.
This section answers some common questions carers might have.
Only the person with cancer can know how much pain they feel. If you have been using a pain scale together, this can help you both communicate about the need for extra doses. The person with cancer may be having breakthrough pain and may need a top-up dose. If this occurs regularly, they should see their doctor again for advice on managing it.
If you’re still worried that the person with cancer is taking, or wanting to take, too much medicine (particularly if the medicine is an opioid) talk with their doctor about the dose they can safely have and other ways to help manage the pain.
It is important to keep opioids away from children and other members of your household or visitors. You can put them in a high cupboard or a secure place.
When someone signs a legal document, such as a will, they must have capacity. This means they must be aware of what they are signing and fully understand the consequences of doing so. If they lack capacity, the documents can be contested later.
If a person’s ability to reason is affected by taking opioids, it makes sense to delay important decisions until the impairment has passed. Ask your GP or specialist to assess whether the person with cancer is fit to sign a legal document or talk to a lawyer about this before any document is signed.
Call a doctor or nurse for advice if the person with cancer:
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- becomes suddenly sleepy or confused
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- hasn’t had a bowel motion for three days or more
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- is vomiting and cannot take the pain relief
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- has severe pain despite top-up doses
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- is having difficulty taking the medicine or getting prescriptions filled
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- experiences other symptoms that the treatment team has mentioned, such as hallucinations with particular drugs.
If the person with cancer becomes unconscious suddenly, call Triple Zero (000) for an ambulance immediately. Do not give opioids to an unconscious or very drowsy person.
We hope that this information helps you provide comfort and support to the person you’re caring for. To find out more about carers’ services, call Cancer Council 13 11 20. You can find local services, as well as information and resources, through Carer Gateway. Call 1800 422 737 or visit carergateway.gov.au. You can also visit carersaustralia.com.au and see Caring for Someone with Cancer.
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Professor Paul Glare, Chair of Pain Medicine, Northern Clinical School, Faculty of Medicine and Health, The University of Sydney, NSW (clinical update); Dr Tim Hucker, Pain Specialist, Northern Beaches Hospital, Director, Northern Beaches Pain Management, NSW (clinical update); Dr Keiron Bradley, Palliative Care Consultant, Bethesda Health Care, WA; A/Prof Anne Burke, Co-Director Psychology, Central Adelaide Local Health Network, President, Australian Pain Society, Statewide Chronic Pain Clinical Network, SA, School of Psychology, The University of Adelaide, SA; Tumelo Dube, Accredited Pain Physiotherapist, Michael J Cousins Pain Management and Research Centre, Royal North Shore Hospital, NSW; Prof Paul Glare (see above); Andrew Greig, Consumer; Annette Lindley, Consumer; Prof Melanie Lovell, Palliative Care Specialist HammondCare, Sydney Medical School and The University of Technology Sydney, NSW; Caitriona Nienaber, 13 11 20 Consultant, Cancer Council WA; Melanie Proper, Pain Management Specialist Nurse Practitioner, Royal Brisbane and Women’s Hospital, QLD; Dr Alison White, Palliative Medicine Specialist and Director of Hospice and Palliative Care Services, St John of God Health Care, WA.
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