Myeloma
If you’re affected by myeloma, you may have many questions about how it is diagnosed, treatment options, side effects and how to stay well. You can find trustworthy information about all aspects of your experience below.
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Diagnosis
- What type of myeloma do I have? What stage and category is it?
- What tests do I need?
- Has the myeloma spread? How fast is it growing?
- Does it need treatment now or do you recommend active monitoring?
- If you recommend active monitoring, how often will I need check-ups?
- Are the latest tests and treatments for myeloma available in this hospital?
- Will a multidisciplinary team be involved in my care?
- Are there clinical guidelines for this type of myeloma?
Treatment
- What treatment do you recommend? What is the aim of the treatment?
- Are there other treatment choices for me? If not, why not?
- If I don’t have treatment, what should I expect?
- How long do I have to make a decision?
- I’m thinking of getting a second opinion. Can you recommend anyone?
- How long will treatment take? Will I have to stay in hospital?
- Are there any out-of-pocket expenses not covered by Medicare or my private health cover? Can the cost be reduced if I can’t afford it?
- How will we know if the treatment is working?
- Are there any clinical trials or research studies I could join?
Side effects
- What are the risks and possible side effects of each treatment?
- Will I have a lot of pain? Can I work, drive and do my normal activities?
- Should I change my diet or physical activity during or after treatment?
- Are there any complementary therapies that might help me?
After treatment
- How often will I need check-ups after treatment?
- If the myeloma returns, how will I know? What treatments could I have?
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