Neuroendocrine tumours (NETs)
If you’re affected by a neuroendocrine tumour (NET), you may have many questions about how it is diagnosed, treatment options, side effects and how to stay well. You can find trustworthy information about all aspects of your experience below.
- What type of NET do I have? Where is it located?
- How far has it spread? What stage of cancer do I have?
- What grade is my tumour/tumours?
- Have you treated this type of cancer before?
- What are the treatment options for me? What do you recommend and why?
- What is the goal of treatment for my type of NET?
- What are the possible risks and side effects of my treatment? How will these be managed?
- What impact will treatment have on my fertility?
- How long will treatment take?
- Is this treatment covered by Medicare/private insurance? Will there be extra expenses?
- If the cancer comes back, how will I know?
If you are thinking of taking part in a clinical trial, here are some questions you could ask:
- What are the possible benefits and risks to me?
- What is being tested and why?
- How many people will be involved in this trial?
- If I cannot get onto a clinical trial, can I still pay for a drug that is currently in a trial?
Need to talk?
Prof Michael Michael, Gastrointestinal and Neuroendocrine Medical Oncologist and Co-Chair Neuroendocrine Unit, Peter MacCallum Cancer Centre, VIC; Tracey Bilson, Consumer; Meredith Cummins and Kahlia Wolsley, NeuroEndocrine Cancer Australia; Dr Ganessan Kichenadasse, Medical Oncologist and Pharmacologist, Flinders Medical Centre, SA; Dr Nat Lenzo, Nuclear Medicine Physician, ICON, WA; A/Prof David Pattison, Co-Director, Department of Nuclear Medicine & PET Services, Royal Brisbane & Women’s Hospital, QLD; Prof Jas Samra, Head of Upper GI Surgery, RNSH and Clinical Prof of Surgery, University of Sydney, NSW; Jillian van Zijl, 131120 Consultant, Cancer Council WA; A/Prof David Wyld, Director, Medical Oncology, Royal Brisbane & Women’s Hospital, QLD.
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