Pleural mesothelioma

If you’re affected by pleural mesothelioma, you may have many questions about how it is diagnosed, treatment options and side effects. You can find trustworthy information about all aspects of your experience below.

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What is pleural mesothelioma?

Mesothelioma that develops in the pleura is known as malignant pleural mesothelioma or, simply, pleural mesothelioma.

Symptoms

Learn about the common symptoms of pleural mesothelioma and when to see your doctor.

Getting diagnosed

Find out about the tests for pleural mesothelioma, how it is diagnosed and staged, and who will provide your care.

Treating pleural mesothelioma

Treatment for people with mesothelioma may be aimed at improving symptoms or trying to control the disease.

Managing side effects

We describe treatments and strategies for managing some common symptoms of mesothelioma, such as fatigue, difficulty sleeping, breathlessness, pain, constipation and weight loss.

Living with mesothelioma

Learn about ongoing care, what happens if the cancer returns, and how to look after your physical and mental health.

Making a claim

Some people who develop mesothelioma due to asbestos exposure may be able to claim compensation. Your legal entitlements will depend on the state or territory in which you were exposed to asbestos.

Further support

You can find many useful resources online, but not all websites are reliable. These websites are good sources of support and information.

Question for your doctorAsking your doctor questions will help you make an informed choice. You may want to include some of the questions below in your own list.

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Diagnosis

What type of mesothelioma do I have?
Has the mesothelioma spread? How fast is it growing?
Are the latest tests and treatments for mesothelioma available in this hospital? Will a multidisciplinary team be involved in my care?
Are there clinical guidelines for this type of cancer?

Treatment

What treatment do you recommend? What is the aim of the treatment?
Are there other treatment choices for me? If not, why not?
If I don’t have the treatment, what should I expect?
How long do I have to make a decision?
I’m thinking of getting a second opinion. Can you recommend anyone?
How long will treatment take? Will I have to stay in hospital?
Are there any out-of-pocket expenses not covered by Medicare or my private health cover? Can the cost be reduced if I can’t afford it?
How will we know if the treatment is working?
Are there any clinical trials or research studies I could join?

Side effects

What are the risks and possible side effects of each treatment?
Will I have a lot of pain? What will be done about this?
Can I work, drive and do my normal activities while having treatment?
Will the treatment affect my sex life and fertility?
Are there any complementary therapies that might help me?

Support

Who can I call if I’m worried between my appointments?
Will others in my family also be at risk of mesothelioma?
Can I claim compensation for the illness? Who do I contact about this?

Learn more about peritoneal mesothelioma.

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